epilim

  1. E

    Sodium valproate or Keppra...or any other advice!

    I had seizures from 18 but I was taken off my meds & gave up alcohol & nothing for 8 years. Then 2years ago I suffered a skull fracture, 7 months later I had 2 seizures within 1h of each other. Now on 600 Episenta (sodium valproate slow release capsules). Now 18 months after starting meds, I...
  2. J

    Progress ....well i think so :/

    So i saw my consultant today and we spoke for well over an hour ...he is going to reduce my epilim as he thinks its the cause of my extreme shakiness ... They are still thinking its both epileptic and non epileptic seizures so they are going to increase the keppra to 750mg twice a day Im...
  3. L

    Thinking about reducing meds - Epilim's driving me crazy!

    Hi everyone, This is my first message here. I've been feeling really hopeless and bitter about things lately and it's hard for my family to understand why I can't just snap out of it and think positive. Don't get me wrong they couldn't be more supportive but they don't know how mixed up...
  4. A

    Talking yourself out of a seizure?

    Hi. Has anybody out there managed to 'talk themself out' of a seizure i.e. really concentrated and stopped it happening? I think I did that last night. I have simple and complex partials. I'm on Keppra and Epilim, but weaning off the Epilim and onto Vimpat. I started the Vimpat (50 am and pm)...
  5. A

    Time for Vimpat ... any advice?

    Hi all, I saw a new neurologist for a second opinion today. He was very clinical and I was upset by his manner (thought my husband thinks I'm oversensitive and he was just being factual). He had my history, including PET and MRI scans. He agreed that it was worth trying another med instead of...
  6. A

    Botox and epilepsy ... ?

    Hello ... probably mainly to ladies reading this. Now, I have to admit I've done the botox thing twice ... once a month or so before my 40th (four years ago) and then again three months ago. Just between my eyebrows. LOVED the results and the fact it made me FEEL GOOD about myself for a change...
  7. P

    Hello! Just joined. A little about me...

    Hi there, Hope this finds everyone well. I am 33 yrs old and was diagnosed with Juvenile Myoclonic Ep when I was 16. I was put on Tegretol which was no use. I had a series of Tonic Clonic seizures over the next few years - mainly sleep-deprivation related. Several of them were in different...
  8. Pipsee

    Weaning off Epilim

    HI all! I haven't been around for a little while! C's (my daughter's) doctor has suggested we wean her off Epilim syrup and I'm just wondering if anyone or any parents have had to wean off Epilim and what happened? She was on 7 ml twice a day and we've slowly weaned down to 4.5 ml twice a day...
  9. Y

    17yr old son diagnosed 1 year ago

    Hiya, I normally avoid forums in general for various reasons but this is pretty good and seems to have loads of helpful and knowledgeable people so here goes................Sorry it is soo long - will keep it shorter in future! My (then 16yr old) son was diagnosed with primary genralised...
  10. M

    Introductions

    Hi everyone. What a relief to find a forum like this. My 13 year old daughter, Robyn, has just been diagnosed with elilepsy. Is came out of the blue. A healthy, gifted child with absolutely everything going her way suddenly has a grand mal seizure which lasted more than 5 minutes. After the...
  11. V

    epilim and major lack of sleep

    hello all a few weeks ago my neuro took me off carbamazipine so i was un medicated for about two weeks. the first week i was off meds was fine but the second week was bad i have not sleep for more than 2 hours each night for the last 5 nights. yesterday i started epilim and wantedto no what...
  12. Bernard

    UK class action lawsuit over Sodium Valproate birth defects

    Sodium valproate is the chemical name for Epilim/Depakote: Action over epilepsy drug 'could rival thalidomide'
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