medication

  1. CBernieBlack

    Meds and rocking

    Has anyone found themselves rocking a little bit while on medication? I'm not talking about air guitar in your underwear...although that is awesome...and I'm guilty of that as well. =) :rock: Third week on Vimpat and boosted up to 100mg and I'm noticing a bit more space out and a little...
  2. CBernieBlack

    Starting Medication

    Well, after a 3 hour meeting with my new neuro on Friday, it became crystal clear that I need to start a medication schedule. So tomorrow, I'm starting at 100mg Vimpat for two weeks, then ramping up to 200mg by the end of the moth. Kinda of nervous about it since I had such a bad reaction to the...
  3. S

    What should I ask my neurologist?

    Hi I have just posted earlier today in the new people section and got some lovely replies. I am being tested for Temporal Lobe Epilepsy (simple, partial I think) as I get déjà vu episodes complete with hideous fear, nausea, tingling arm, audio/visual hallucinations. I also have mood...
  4. H

    muscle twitches, upping depakote

    Hi everyone, I've had epilepsy since I was 11 and after going through some different medications, I finally found that depakote worked to control my seizures. (I have juvenille myclonic). I've been doing great on this for about 12 years now, but recently I've been finding that I have very small...
  5. CBernieBlack

    New poster with a history

    Hi all! New to the forum here and I'm searching for some answers. It all started when I was 4 or 5. I didn't know what was happening, but my mother said I was having seizures for a period of 6 months. Grand Mal full on convulsion types. Doctors said they were stress induced psycho motor...
  6. C

    Stress and Epilepsy

    Greetings, I just suffered a Grand Mal Seizure while driving to work Yesterday morning. I remember pulling out of my driveway and that is it. I somehow made is about 200 yards and pulled over? I vaguely remember small details of driving back home but besides this... I have been taking my...
  7. M

    Can seizures cause a change in mood?

    I have noticed a definite change in my mood in the recent as my seizures have gotten worse. It's difficult to describe over the last couple of weeks I have been very sick trying to adjust to a new medication and I guess worrying about seizures doesn't help but I have a feeling that I am having...
  8. M

    Medication side effects phenytoin

    I've recently been moved on to a new medication phenytoin/epanutin and it is making me feel so nauseas, I don't think I've ever felt so sick in my life, has anybody else experienced this? I am also on keppra and zarontin syrup. The nausea is just awful and I've a splitting headache, does it...
  9. J

    Advice, tips, and referrals

    I just started dating the most amazing girl and she just so happens to have epilepsy. It doesn't bother me and I've spoken to her about it before. She tends to kinda brush off the details though a bit and I just want to make sure I'm well informed of what she has to deal with. She says her...
  10. Aaleayha

    Help with side effects

    So I'm starting this off by asking for help with extreme thirst and cotton mouth. I'm drinking too much water in one day to try and quench it. And I can't ignore it because it hurts, physically, when I get thirsty. How do I get rid of this?
  11. P

    treatment for myoclonic jerks

    Hello to all of you. I am new here. About three weeks ago, I noticed that my body was jerking the minute I officially went to sleep. I didn't think much of it back then. But it kept on happening and then for a couple days it stopped. I had GREAT sleep those couple days. But then it returned. I...
  12. F

    Temporal lobe seizures, does anyone else experience this?

    A little history... I recently found out I have temporal lobe epilepsy. Because my EEG activity was so concentrated in one area, I had an MRI to rule out a tumor, and none was found. I was pregnant at the time and hey could not do the MRI with dye, so I'm told there is still a slim possibility...
  13. A

    Opions of second brain surgery.

    I'm currently given the choice of haVING A SECOND BRAIN SURGERY OR ANOTHER MEDICATION ADDED TO THE medication I'm already taking. I'm taking 8 medications as it.I know surgery and unerstand it.I have had the VNS surgery in 2003.Brain surgery in 2006.Jaw surgery in 2010 and VNS battery...
  14. S

    Hi everyone!

    Hi, I am 43, and have been on treatment for epilepsy since I was 8. I've been seizure free for about 9 years now, but have been told by the doctors that I cannot think of withdrawing my medication. I feel that the long term medication is beginning to tell on me by way of certain side effects...
  15. Ccsf00

    What medication is working for you?

    I have juvenile myoclonic epilepsy. I take a low dosage of Zonisamide and my seizures are completely controlled. Side effects: Chronic fatigue, clouded thinking. Anyone find a drug with limited side effects? Let me know what you're taking, and why. I am seeing my neurologist in a week and...
  16. K

    side effects

    im 18 years old and have been on valpro, epilim and am now on keppra (which my neurologist told me would have no side effects) and im still getting th same ones as i was on the last medications which include extreme hair loss and depression. my doctor said that if its not medicated, my condition...
  17. J

    Tourettes and Epilepsy. So tired of it all!

    Hey. I'm new here. My name is Julie and I not only have Epilepsy but I also suffer from Tourette's Syndrome. I know, lucky me. I've had Tourettes for since I was 8 years old. Well, when I was 23 I was twitching so hard while driving and I ended up in a car accident which ultimately resulted in...
  18. M

    Epilepsy Clinical Study

    I thought some of you might be interested in learning more about a clinical study that is enrolling people with epilepsy who still get seizures. If you’re interested in learning more, please visit www.epilepsyclinicalstudy.net .
  19. W

    Need advice please

    My flatmate has epilepsy and is a frequent fitter, and I’m worried about how he’s dealing with it. He’s been epileptic since he was a teenager (he's now 23) and says he’s never managed to find any medication that works. He also has a problem where his shoulders both dislocate when he fits which...
  20. D

    Treatment (medication) for Eating Seizures

    Hi All, I am seriously considering medication for my eating seizures as I want some extra protection against them happening. I am looking forward to driving again but I would like the extra security of my seizure threshold being raised. My seizures are Generalized, tonic clonic type and have...
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