surgery

  1. G

    Hi Everyone

    I am happy for finding this great community. I have a mother who is living with epilepsy. Her situation became worse since last year. Because she lives in a smaller city in Kazakhstan she does not have much access to proper care. She has been living with epilepsy since the age of 10 and has...
  2. edepew151

    Surgery Fears...

    Hey everyone So, I've found a neurologist who believes I could be an excellent candidate for surgery. We are starting the eligibility testing this week, just to confirm. I had asked another doctor about it years ago, but was told it wouldn't work for me, even though they couldn't give me a...
  3. T

    Refractory Epilepsy and Controlling Seizures

    Hi, my name is Tyler, I'm 21 and I'm new to the forum. I was diagnosed with complex partial TLE over two years ago and am considered refractory. I have on average about 15-25 seizures a month. I've had two 15 min EEG's, a 3 hour EEG, and an overnight EEG with one abnormality on one of the test...
  4. N

    Update from CQ!

    Former long-time CWE member CQ has asked me to post an update on her current seizure health. (see http://www.coping-with-epilepsy.com/forums/f41/brain-still-behaving-itself-most-time-23038/). CQ had a vEEG in July to diagnose some "funny feelings" she had been experiencing occasionally. It...
  5. DayDreamer

    Happy with my year old Neuropace device

    Just an update on my RNS for anyone with interest: The responsive neurostimulator I had placed in my skull last year seems to be helping with seizures that impair consciousness. It has not controlled my seizures. I still have them, but they are less. Looking at my seizure diary from 1998...
  6. D

    Hi, I had a benign tumor on my amygdala

    I’m a 30 years old male from Istanbul. I lived with a benign brain tumor (dysembryoplastic neuroepithelial tumor) located within my left amygdala for at least ten years without knowing, and had it diagnosed and removed in July 2013, with no additional radio/chemotherapy. (I was having strong...
  7. DayDreamer

    Theres no place like home .. with Neuropace

    I am at home from hospital feeling almost normal after a surgery of around 5 hours and a stay of two nights/ three days. I now have a responsive neurostimulating device implanted within my skull with two cortical strip leads and two depth leads implanted close to my epileptic foci. Until I see...
  8. DayDreamer

    I am off to see the Wizard....

    Oh man! I see the neurosurgeon on Wednesday and hopefully make a date for implantation of the RNS Neuropace within a few weeks. I have waited for this for six years as my attempt for the clinical trial messed up. I am normally a stoic person but for the last week since this appointment was set...
  9. N

    article about RNS brain implant

    The Neuropace RNS brain implant has been approved by the FDA. You can read the NYTimes article here: http://www.nytimes.com/2014/03/25/health/easing-epilepsy-with-battery-power.html?ref=health&_r=0 The article discusses the device, and profiles someone who's had a good experience with it...
  10. J

    Anxiety after brain surgery?

    Hi, I've had epilepsy surgery two weeks ago in the left temporal lobe. The operation itself has gone pretty well and I'm back home now to spend the next couple of months recovering. But I find some days I'm very nervous or anxious for no particular reason, and I'm wondering if anyone else has...
  11. B

    new member

    Hi My name is Bill and my 22 year old autistic son has seizures and as a result chronic right shoulder anterior dislocations, and the docs dont want to operate until he is seizure free for a year. How have those of you who have similar situations dealt with this? We have been able to reeduce...
  12. R

    Neuropace (rns) surgery candidate.. Anyone have have the procedure?

    Hi I have done over a year of testing & found out that I am not a candidate for a temporal lobectomy. Pretty bummed out... Anyways my doctor mentioned neuropace. It will be up for FDA approval in a couple weeks and he thinks I might be a good fit. I was wondering what the surgery is like...
  13. M

    New member, saying hello.

    Hi, I'm new to online forums for epilepsy. I've had tonic-clonic seizures and auras for 32 years now. More info in my bio. I'm looking for answers from anyone who has had left temporal lobe space occupying lesions removed. Tell me how it went, why did you go for surgery, was there an option? I...
  14. A

    My Head after brain surgery

    These pics I took myself after my brain surgery. You can see the incision and the red spot next to it is where they put in a drain, a long tube attached to a bulb similar to that you see on a blood pressure cuff and where they drilled the hole in my skull. Will always have a dent in my head.
  15. M

    Hey Everyone!

    I am new here! My name is Grace...I am 23 years old! I have had epilepsy since I was 15 years old.. I was having up to 3 seizures a day..every two days! On the 18th of January I underwent surgery to remove the lesion I was born with to remove my epilepsy I am as of today..2 months seizure free...
  16. edepew151

    Epilepsy Surgery?!?

    So I've been on 4 different medicines and I have a VNS, but I'm still having seizures quite often. I went to my neurologist last week and he said he wants me to start considering epilepsy surgery. It absolutely terrified me!!! BRAIN SURGERY?!?! I was just wondering if anybody here has had it...
  17. A

    Opions of second brain surgery.

    I'm currently given the choice of haVING A SECOND BRAIN SURGERY OR ANOTHER MEDICATION ADDED TO THE medication I'm already taking. I'm taking 8 medications as it.I know surgery and unerstand it.I have had the VNS surgery in 2003.Brain surgery in 2006.Jaw surgery in 2010 and VNS battery...
  18. E

    Simple-partial surgery, seizure-free for five weeks!

    Hi! I'm Erica. I'm new here and just wanted to introduce myself. I was diagnosed with simple-partial epilepsy when I was seven. It originated in my left intertemporal lobe, right between the motor and sensory strips. When I have a seizure, my right hand clenches up and shakes for about ten...
  19. P

    Cheers for Charlie!

    Charlie Peterson is a man who suffered from epilepsy for decades. He had one unsuccessful brain surgery, then another, which was successful, ten years later. Since that time, he has risen to be an active advocate and to give back by helping all those in need. Here is the published letter he...
  20. AmandaLynn

    Goin in Dec 10 for Invasive EEG and possible Temporal Lobe Rection :einstein:

    Hi there everyone I'm wondering if I can get some input from those out there that have gone through the invasive EEG, and/or completed a Temporal Lobe Recection? I've gone through all other testing, I'm set to go in to the Hospital Dec. 10th and I'm just now starting to get a bit...
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