epilepsy

When I was first diagnosed as a teen, no one around knew what to do with me. My parents refused to use the “E” word. People treated me like I was some kind of pariah (which didn’t make me feel warm and fuzzy either.) Guys never called back for a second date. The Dilantin made me feel like a...

This breakthrough news from Bottom Line Health: http://view.ed4.net/v/7M9FCP/AMBZC/NJFCYV3/PX9WX/MAILACTION=1&FORMAT=T "People with epilepsy, Parkinson’s disease, Attention Deficit Disorder (ADD) or addictions may be able to learn how to "think themselves better" by altering their brain waves...

The VNS Message Board has been on the move this weekend. I have now reached total independence and OWN the dang thing instead of relying on InvisionFree for the freebie. (this really means I have to now pay monthly server fees! =( Hey Bernard about that advertising.....) We are ALMOST ready...

There is much hype and concern about the effect of 3D viewing being a trigger to epileptic seizures - the concerns and the myths need to be dispelled. This is probably the hottest topic glabally amongst epileptics. Have a look at this brief but pertinent article which offers some interesting...

Hi, Well, I found out this morning that a friend, aged only 19, died suddenly from epilepsy. Although I hadn't seen him for some time, he was a close friend while I was growing up; a lovely, funny guy. I just can't stop thinking 'he should still be alive'. He was at uni, and had a seizure at...

CURE announces a groundbreaking new focus on funding and collaboration in epilepsy research. Simply click here, to find out more: http://cure.convio.net/site/MessageViewer?em_id=1301.0&dlv_id=6521

Déjà Vu - just how many of you have experienced really wild things where it just freaks, spooks, and totally scares the socks off of people? I am having way too many of these in what used to be isolated once in awhile episodes, but now have progressively since late 1990s have grown insomuch the...

My abuse wasn't physical, it was emotional... My mother and step-father (a surgeon!) refused to acknowlege I had epilepsy and ignored all the falling, passing out, walking into walls, etc. My father was a "beater", but he never touched me because I was already "damaged goods." But every time...

Okay, LONG story but i'll keep it as short as possible. My 6 year old son was diagnosed in March 2009 with Complex Partial seizures because he suddenly started having seizures a few times a week and occasionally 2x a day. They lasted anywhere from 5 minutes to 45 min. We, of course called an...

Hi!! I'm Gravity (yes that's my given at birth name haha everyone asks me about it) I'm 29 years old and I was diagnosed with epilepsy when I was 4. I have tonic clonic, complex partial and when I'm really really tired atonic seizures. I am currently on Tegretol, but my epilepsy is still not...

I was on a film set for the past 3 days and got to know the crew pretty well. At the end of the shoot, I gave everyone from the talent to the intern an epilepsy awareness bracelet. The sound mixer cried. The production manager thanked me profusely. The make-up artist put it on right away...

"WASHINGTON, Oct. 23 /PRNewswire-USNewswire/ -- A recent edition of Immunotherapy Weekly reported that the television program 'Sharing Miracles' featured award-winning actor Danny Glover during the month of September. In this episode, the Hollywood star discussed his career and his battle...

Hi, I wondered if anyone had any tips on breastfeeding my baby who has been diagnosed with epilepsy, please? In particular I want to know: If there are any foods/drinks I should avoid? If there is any particular diet I should adopt (I have been reading about ketognic diets, but have no idea...

My name is Phylis Feiner Johnson and after being a professional advertising copywriter for 30 years, I have changed my focus to epilepsy: becoming an epilepsy advocate for education, awareness and funding for epilepsy research. My blog address is epilepsytalk.wordpress.com

I am currently in hospital with eeg and camera monitoring. epilepsy started in 84 when my friends told me I am deaf. Diagnosed then with petitemal frontal lobe. Then it started with me getting confused and disoriented, drop attachs (had to get shoulder op) Getting fits all over the spectrum...

I will NOT disclose whom they are, rather I will just merely disclose that it is very interesting to have rapport - but first and foremost, permit me to disclose that I had "canned" the "Webcam" years ago; without much ado and going into details I will put it into one word ---> "Perverts"...

This is from the ILAE (International League Against Epilepsy) It will yet to become "Official" later this year, but it breaks down the "focalized epilepsies" and then some: (emphasis in quote below are mine) ILAE Classification - New

I am already enrolled in this program and quite a few folks are already enrolled as well; however, I have spoken with Colleen at Team WebEase with Emory University (in Georgia); and they are needing MORE people to participate: They are quick to let you know if you qualify or not, and PLUS -...

This Poll is Open Forum and Public; I notice the original poll (which was one of CWE's earliest Polls) apparently vanished and most likely due to the change of servers that CWE has progressed - because CWE HAS GROWN! :tup: HERE WAS THE ORIGINAL QUESTION: Does Hot Weather or Cold Weather...

This poll here is PRIVATE out of respect for others. Anti-epileptic drug(s), Surgery, Seizures, Genetic, Mitochondrial, just to name a few - can impact individuals with Epilepsy with their memory and/or cognitive functionality. In this poll, is very simple question with simple answers, and you...