epilepsy

Hi there, My husband has been recently diagnosed with epilepsy. He had one large seizure within the last month, and has several incidences of jerking/twitching (mostly at night during sleep). The dr prescribed him Keppra. He didn't have a history of seizures before this. He is also an active...

Hi there, My husband has been recently diagnosed with epilepsy. He had one large seizure within the last month, and has several incidences of jerking/twitching (mostly at night during sleep). The dr prescribed him Keppra. He didn't have a history of seizures before this. He is also an active...

My neurologist brought this up and I didn't know they existed. She didn't get into details about them and I am hoping someone could ellaborate a little. She said it would be a last resort, but I still really want to know more. Nicole

Hi everyone, My daughter began having seizures at 6wks....still having them. They are supposedly partial seizures that are progressing to generalized. Some days she has 2 a day, and sometimes there are 2-3 days between episodes. Originally she was put on Keppra and when that didnt work...

Hi whomever takes the time to read this, My name is Colie and I was recently diagnosed with Epilepsy in late April of this year, 2011. Before April I had never had a seizure in my life and I am going on 23 years old, since April I have had atleast 40, but there probably has been more. They are a...

I'm currently given the choice of haVING A SECOND BRAIN SURGERY OR ANOTHER MEDICATION ADDED TO THE medication I'm already taking. I'm taking 8 medications as it.I know surgery and unerstand it.I have had the VNS surgery in 2003.Brain surgery in 2006.Jaw surgery in 2010 and VNS battery...

Since I have been diagnosed with JME I have gotten a rash on my face around my nose and between my eyebrows and around my eyes and eyelids. It looks like seborrheic dermatitis(red, flakey) which has been linked to epilepsy and other neurological disorders. Has anyone experienced this? I've...

For all of you who were looking for epilepsy support in South Carolina (since there is no EFA office there), you can contact the SAFE website: Karen St. Marie (843) 991 7144 http://scepilepsy.org

In this eye-opening article from the New York Times, a neurologist talks about his own journey with epilepsy: his perceptions, other people’s reactions (not good) and how he decided to become a neurologist. A wonderful account of the doctor as patient and “must” reading for anyone who has...

So you have epilepsy. And you’re left-handed. Is it a curse…a blessing…or a challenge? Well, you’re not exactly alone. Between six and sixteen percent of people today are left-handed. And guess what? Left-handedness is also associated with a higher incidence of epilepsy. Gee, what a...

Hey all. Im Andy Morley i am the father of Thomas (Tom), he is 5 years old and has generalised partial epilepsy. He suffers from Atonic and Tonic Clonis Seizures. He also has a Vagus Nerve Stimulator. I run an epilepsy blog here in the UK, (uk epilepsy . com) Nice to meet you all. Andy & Tom.

Dear Friend / Neighbor, This isn’t a note asking for money. (Although feel free to donate if you want to!) It’s about epilepsy. Because even though over 3 million Americans have it (more than Multiple Sclerosis, Cerebral Palsy, Muscular Dystrophy, and Parkinson’s Disease combined), no one...

This is about awareness, not fundraising. Although if funds came out of it, that’s ok! Last night, I kicked around the idea of starting a grass-roots epilepsy advocacy group. (The working name is Epilepsy Awareness Alliance, although it doesn’t matter.) Nothing to do with the government, but...

So why not make up your own? Like... What's the difference between a brainstorm and a storm in the brain? A brainstorm is a breakthrough idea. A storm in the brain is a break through seizure...

Charlie Peterson is a man who suffered from epilepsy for decades. He had one unsuccessful brain surgery, then another, which was successful, ten years later. Since that time, he has risen to be an active advocate and to give back by helping all those in need. Here is the published letter he...

Epilepsy Care Programs also on the Chopping Block Congress is considering a bill to reduce government spending by as much as $100 billion. Of that, more than $12 billion will come from important health programs – including medical research into a cure – that benefit people with epilepsy...

Attached is a compilation of EFA Summer Camps. Ages range from 6 – 26, depending upon the camp and its activities. All dates are approximate and the camps should be contacted early for exact dates and application. Staff includes a neurologist, several nurses, and counselors, all with special...

If I was asked to take part in a clinical trial, I’m not sure what I’d say… First there’s the fear factor. Would I be a guinea pig for something dangerous? Would they take away my meds? Would it hurt me? Would it change something in me? I asked those very questions to Patient Advocate David...

It starts in the playground. A kid has a seizure and everybody freaks out. Nobody knows what to do. Maybe not even the school nurse. Even though epilepsy first aid is a cinch. It’s frightening to see a child seize and then, based on that fright, they think “I can’t deal with this.” Some...

From BLOOMBERG NEWS Published: January 28, 2011 “Pfizer, the drug maker, has been ordered to pay a total of $142.1 million in damages for violating federal racketeering laws in the marketing of its epilepsy drug Neurontin. Kaiser officials claimed they were duped into believing that migraines...