1. WendyCS

    Abnormal EEG w/ strobe lights

    Hello, I am new to this forum. My son who is 11 had his first seizure 2 weeks ago. We went in for an EEG and all activity was normal except when the strobe light test was done. The tech said he had several abnormal spikes and seizure activity. He said he feels my son had a partial seizure...
  2. S

    Epilepsy Support Group in Dubai, UAE

    Looking for Epilepsy Support in Dubai? You may want to check out EpilepsyDubai on Meetup.com If we can get enough members together we can either meet in Safa or Zabeel park or else online through Skype group calls. Also see the blog epilepsydubai.wordpress.com or if you have a Twitter account...
  3. T

    4 1/2 year old son with seizures of unknown cause

    My now 4 1/2 year old son started having seizures in March 2014. The first day he had 3 in one day. Two of them being in the ER where they then transferred us to Pediatric ICU Sutter Memorial in Sac to have further tests done. MRI, CT SCAN, SPINAL TAP, EEG, BLOOD AND URINE TEST all came back...
  4. nataliejx

    How do you try to make your family understand and gain support from them?

    Hey everyone. As you can see on my profile a bit about me. I am currently taking Keppra to control my seizures but I am having some horrible side effects; depression, vomiting, nausea, headaches, sleepiness. I went away for a long weekend to Cork and went to see one of my favourite bands in...
  5. nataliejx

    How do you deal with your epilepsy? What medication are you on?

    Hey everyone, just a little bit about me..my name is Natalie I'm currently 21 and was diagnosed with epilepsy in November 2013. It all started when I went out for a friends birthday on 22nd September 2012, I'm not a big drinker so only had a few glasses of rose when I started to feel really...
  6. Alexis

    Auras without seizures, or seizures themselves?

    The past couple months, I've been having some intense auras, without the following tonic clonic seizures. I feel dizzy, have a sort of out of body feeling, pretty confused, and thinking and talking is pretty weird... They last between 15-60 minutes, which is normal. Usually I lose most of my...
  7. JLogefeil

    I Started This Epilepsy Group!!

    I'm trying to get more people into this group. Here is the link please join and get involved and if course sores the word. Thank you!!šŸ˜„ https://m.facebook.com/groups/524159381022587
  8. skyfire322

    I just wrote this yesterday as a way to vent.

    I know it's kind of a mess, but I thought I'd share it anyways. :) http://skyfire322.blogspot.com/2014/05/epilepsy-silent-storm.html
  9. C

    Epilepsy and cluster migraines

    Hi, Unfortunately, I am back hoping, once again, for some help from the very supportive and kind people who participate on this Forum. Background info: My son, 27 years old and developmentally delayed, suffered two tonic clonics on March 10, 2014. They were only the 3rd and 4th he's suffered...
  10. I

    Help! Don't know likelihood of epilepsy/seizures

    Hi all, I so appreciate in advance your help. I'm a 27 year old female, and in my life I've had two seizures. The first was when I was fifteen, and had consumed (for the first time in my life) quite a bit of alcohol. The second is a bit more of a mystery. It occurred when I was 19, and I...
  11. T

    new here

    :e::hello: hello everyone! i'm new here, i came across this forum on google at 6am. see, i suffer from insomnia as well as juvenile myoclonic epilepsy. i was diagnosed about 3years ago and although i've come to terms with the fact that i have epilepsy it's still very hard for me to deal with it...
  12. M

    Healthcare Island

    Hello everyone! It's been a while since I last posted maybe three years? Jeez, I thought it would be a good thing to return as it can be a bit lonely to go through something by yourself. I live in a frustrating area of the country, I'm only 25 miles from Chicago and Illinois border yet I'm...
  13. C

    New to seizures, epilepsy, and this website

    Hello, I'm completely new to all of this and very grateful to have somewhere, and someone, to talk to. My name's Cait, I'm 24 and had my first seizure in October. I was very stressed, sick with some unknown virus (still don't know what it was, I was told samples were sent to the CDC), and just...
  14. T

    Constant Epileptic Feeling Since Quitting Meds

    Hey everyone, I'm new to this forum and am curious if anyone knows the solution to my problem (no doctors have been able to help). As a brief history, I had peti-mal seizures growing up and one grand-mal seizure, was put on Tegretol and the seizures went away after a year (eventually was on...
  15. kristarenee

    After 9 Years

    My seizures started when I was 15 years old, since then, I've seen 4 different primary doctors, and 2 different neurologists, and yesterday, yesterday.. I was finally diagnosed. After 9 years I was finally diagnosed with Juvenile Myoclonic Epilepsy. After 9 years of ER visits, blood draws and...
  16. S

    Our journey with Absence Seizures

    My daughter was diagnosed with absence seizure epilepsy at 4. One of the most common forms of seizures in children but one which is often unnoticed or misunderstood. Around this time, when she had a seizure she would stare into space, her eyes would darken and look vacant, she would stop moving...
  17. S

    Needs loads of help for college.

    So i study media in college that focuses on photography, filmography and so on. We are mostly on computers at college the only times we're not on computers is when we do maths and english or doing photography but that creates a trigger. I'm finding it hard to work as i have seizures 24/7. the...
  18. JLogefeil

    How Is Everyone?

    I haven't been on this site forever. How is everyone doing? I'm doing good I'm 25 weeks pregant and you can get updated and or follow me on YouTube my channel name is jujub428. Other then that, how is everyone?
  19. D

    What kindof seizures are these?

    Are these atonic seizures or cataplexy? I have been having seizures for over 3 years now (I'm 28). They have only progressed despite taking Neurontin, Lamictal, Valium and Xanax. They started out as simple partials (flashing lights, nausea, hallucinations: olfactory, visual and auditory)...
  20. mylo

    [Info] borax for epilepsy? what am i reading?

    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2338216/pdf/brmedj06790-0016b.pdf apparently sodium biborate (borax) was used in the treatment of epilepsy with success? brb, going to my laundry room. by the way, i know borax is a mix of compounds and probably a quick trip to the grave if consumed.