epilepsy

Hi all, my name is Patrick, I'm 35, and had my first two seizures this past December 28th. I went ahead and copied my profile section about my seizure history. Please feel free to comment or PM me if you have any advise, or suggestions. I still haven't been officially diagnosed with...

Hey. I'm new here. My name is Julie and I not only have Epilepsy but I also suffer from Tourette's Syndrome. I know, lucky me. I've had Tourettes for since I was 8 years old. Well, when I was 23 I was twitching so hard while driving and I ended up in a car accident which ultimately resulted in...

I thought some of you might be interested in learning more about a clinical study that is enrolling people with epilepsy who still get seizures. If you’re interested in learning more, please visit www.epilepsyclinicalstudy.net .

“They told us at that time, don’t worry, these seizures won’t damage your child … And of course, we sadly, we learned after the fact, that it wasn’t the case, and that these seizures were doing tremendous damage to her.“ At that time, David and Susan Axelrod had become the parents of Lauren...

My seizures have been controlled with meds for many years now, but recently I've developed a moderate case of near constant vertigo (a sense of falling or spinning). I've ruled out an ear infection, but I'm wondering if anyone else has experienced this as part of their seizure disorder? I take...

Hi there, Finally decided to do more research into my epilepsy and it got me here. Seems active and a decent place to discuss things. I'll probably start a thread about it all in the next few days. No idea what type of epilepsy i have but i know that they only happen when im asleep and i have...

Hey there, i've been getting this very strange feeling, its not often, but when it does occur, I really dont like it. Maybe you can help me work out what it is, or if its natural, or whatever. It started for the first time a few years ago, I got invited to my friends house, and during my visit...

A strong relationship between migraines and epilepsy has long been suspected. But now it is fact, according to extensive research cited by Steven Karceski, MD in Practical Neurology Magazine. People with epilepsy are more than twice as likely to develop migraine headaches as those without the...

Hey there, I was wondering how the drugs for people with photosensitive epileosy work, i understand that the intention of the epilepsy drugs is to reduce seizures, however if thats the case, how do the photosensitive epilepsy drugs work, do they prevent you from having seizures around flashing...

Hi everyone! I'm new to this site and new to epilepsy. My 2 year old, Lucy, was diagnosed with epilepsy. She has generalized absence and petit mal seizures. You probably wouldn't know she had an illness if you had just met her. She seems perfectly "normal" (whatever that actual means)...

Sometimes, I get into a funk so bad that it’s like a black hole. Until I remember the safety ladder that I always carry in my pocket. I think of at least five things I’m grateful for. Or if I’m down there awhile, I stretch it to ten. Here are the top five on my gratitude list: 1. My life...

Ok everyone, sorry I haven't been on in a long time. I have been fighting Social Security and won. I won my case for my disability for e. They say I have to forms of E. Also they say I have conversion disorder (have to research that one..lol) I just wanted to all let you know also that my...

In one study, participants anticipated that their self-perceptions and self-esteem would be more positive if they didn’t have epilepsy. Self-perception turned out to be one of the most important predictors of successful social relationships in people with epilepsy — even more important than...

hello, has anyone experienced the side effects of insomnia while on keppra? i am on 1000mg of name brand keppra daily. 500 in the morning and another 500mg in the afternoon/early evening when i get home. my history: i am 40. family and kids. been living with diagnosed epilepsy for about 10+...

Alert your Governor about an Important Letter This week, the U.S. Government sent an important letter to every state health department. It stressed the importance of eliminating barriers that prevent people with disabilities from becoming fully integrated into their community. Will you...

Years ago, women who had epilepsy were often discouraged from getting pregnant. Today, that’s no longer the case. Thanks to early and regular prenatal care, more than 90 percent of pregnant women who have epilepsy deliver healthy babies, according to the Epilepsy Foundation. The Difficulties of...

My daughter recently wrote a poem about what it feels like to go through a seizure. I think it is amazing. She has put it up on YouTube. You can see it by searching for Tack1800 on YouTube and selecting "The Seizure State". I'd post a link, but haven't been listed here long enough yet.

In the News: July 31, 2007 “Chief Justice John Roberts walked briskly out of a hospital in Maine on Tuesday and resumed his vacation, returning to normalcy a day after he suffered his second seizure in 14 years. Roberts had been traveling extensively prior to arriving in Maine for vacation...

Was it because of your epilepsy? Was it through the advice of a doctor, friend or loved one? Were you googling "support groups" or forums for epilepsy? Or were you trying to help another person with a disability?

When I was first diagnosed as a teen, no one around knew what to do with me. My parents refused to use the “E” word. People treated me like I was some kind of pariah (which didn’t make me feel warm and fuzzy either.) Guys never called back for a second date. The Dilantin made me feel like a...