neurologist

  1. thornton8000

    Something different for me

    Hey all, Its been awhile since ive posted here. My neuro wants me to see a PNES doc on the 31st, even tho my seizure are about 80% controlled with my keppra, since my veeg was clear he thinks they are PNES, not any other form of seizures. But the part that is different for me is this afternoon...
  2. A

    November 6th, My EEG is scheduled

    Got the call this morning. My EEG is scheduled EXACTLY 2 weeks from today, November 6th. WOW, that's fast. Didn't expect to be scheduled till maybe the middle of November or toward the end but it's two weeks from today. Can't decide if I'm nervous yet. lol Glad at the same time, hoping to have...
  3. thornton8000

    Sooooooo starting all over

    Hey my friends, Starting seeing a new neuro in june and he has been running alot of tests, (all still coming back normal) and even though the last neuro I saw said "seizures and PNES" my new one said since my 12 hour VEEG, came back clear i more than likely have only PNES, and he stated that...
  4. A

    My Neurologist has put in the order for my EEG, have a tentative date

    I had a message on my phone when I got home today and my Neurologist's office called and he's put in the order for the EEG & I have a tentative date, looks like it'll be the last week in October or first week in November. He put in the order and now just waiting for approval from my insurance...
  5. A

    How far in advance can I expect to be scheduled for EEG?

    I called my Neurologists office to find out if he'd ordered the EEG & or to find out how far in advance they book them and he hadn't ordered it yet but it's still early. I saw him June 5th & he said he wanted an EEG in 5 months, which would put that in November. How far in advance does the...
  6. A

    Your EEGs have been normal, you have no diagnosis what did your Neurologist do next?

    Okay, let's say your first two EEGs have been normal so you have no diagnosis yet, what did your Neurologist do next? When I had my first EEG, it was only two weeks or so after the Grand Mal seizure and my Neurologist told me that it's possible that it was too soon after the seizure and may be...
  7. thornton8000

    Here we start all over

    Hey all, So my new neuro is tapering slowly my topamax since he thinks it mave been casuing the numbness and memory issues and after tomorrow i'll be complety off topamax. yesterday I fell like my body was having small "clusters" of sps if that makes any sense, i'd lay in bed try to sleep and...
  8. A

    When your Neurologist gives you that strange look

    I don't know if anyone's done it but the last time I saw him, he mentioned it being a year since the seizure and I said almost a year but I wasn't thinking about the seizure, I was thinking about the brain surgery cause they were two months apart. He thought I was talking about the seizure and...
  9. thornton8000

    updates

    Hey Gang! I cant remember if I've told you all this: My new neuro has changed my dose on both my meds: Keppra gen: 1000mg 2x daily Topamax gen: 50mg 2x daily still ahving some seizures not as often so this is good! less than before so i'm happy. My neuro is running test to see what else is...
  10. thornton8000

    start of the new dose with questions

    hello friends, Yesterday was a rough day, neuro's nurse thought i had another tia, was nothing like the last one so I blew them off. (plus last time I went in the told it was memory issues) My wife just found a lighter under a ice pack from me (dont remember putting it there) she drilled the...
  11. thornton8000

    Auras acting up again

    Anyone else have this? After your body gets used to the level of meds your on do your auras come back after they've stopped? I went 27 days roughly without an aura and they've just now started up again yesterday was grape soda and today was lemons! as I was walking towards a elevator and again...
  12. thornton8000

    question for everyone about seizures and PNES

    OK here goes, As i've posted before I've been DX with seizure's and PNES so does this mean that i'll one day become refacroty? (sorry if i spelled it worng) And that the meds will not work and that's why the keppra worked for a short while on the lower dose and why my new neuroshrink wants to...
  13. thornton8000

    So my new neuroshrink

    So Finally got a DX! I have seizures! and a mild form of PNES. The new neuro actually listen and is looking at over 300 plus papers I brought in of med records and my seizure journal, and listened to me and my wife and my kids that are old enough to talk about what happens to me when I have my...
  14. thornton8000

    question to everyone

    So here's an update and a question: update: talked to my PCP and she thinks it good that I;m learning all I can about the my thoughts about them misdiagnosising me with PNES, and bringing in my proof, but she wouldnt touch it with a 20' pole since she knos nothing about the brain and is leaving...
  15. thornton8000

    Got a call about VEEG

    So I got a call about having a VEEG to be done, they didnt say anything to stop my meds they want to do a 3 hour VEEG I'm going to call them back on Monday the 4th the day before my 32nd birthday, I have my new neuro for a 2nd opinion set up on the 21st of june so I'm thinking I should wait...
  16. thornton8000

    topamax and keppra my new mix

    well its been 2 and a half days that I've been on these meds combined and I have to say so far it has been the best thing to ever happen to me :woot: Everything I can find on the internet about PNES says it does not respond to AEDS at all and my neuro said well we'll try adding the keppra for...
  17. thornton8000

    What to expect?!

    Hello Me again! Just wondering what I should be looking out for: I'm presently on topamax 150mg a day and my neuro just added 1000mg of generic keppra a day to the mix, I would like evryones input on what I should expect. Now A little back ground on my dianosis, and history indepth more than...
  18. P

    [Info] A neurologist talks about his own epilepsy…

    In this eye-opening article from the New York Times, a neurologist talks about his own journey with epilepsy: his perceptions, other people’s reactions (not good) and how he decided to become a neurologist. A wonderful account of the doctor as patient and “must” reading for anyone who has...
  19. D

    I am new

    hello everyone I am a 36 yr old Mother of 7 ( 3 step children,lol) and my youngest son has epilepsy. He was diagnosed at 4 years old. He is now almost 8 years old and has been on Kepra- lamotrigene combo, and more recently clobezam was added to the mix. My question is this, even though Iain...
  20. P

    Favorite docs, please?

    Do you have a favorite Neurologist...Epileptologist...Neurosurgeon...or Pediatric Doctor that you'd like to recommend? If so, please write down their name, specialty, hospital affiliation (if you know it), city and state. It will be added to the Comprehensive List which is a real help for...
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